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Patient public involvement opportunities

Source By: CCG

 1.       Alliance Diagnostic Hub in north east London – Patient Advisory Group members

UCLH Cancer Collaborative plans to open a new Diagnostic Hub for people living in north east London (Barking and Dagenham, City and Hackney, Havering, Newham, Redbridge, Tower Hamlets, Waltham Forest). The Hub will improve early diagnosis for patients with conditions that increase their risk of cancer, as well as monitoring patients with early stage cancer who do not need treatment right away.

We’re looking for people who would like to join a Patient Advisory Group to help us develop and launch the Hub. We are particularly looking for people with prostate, upper gastrointestinal or colorectal cancers, or who have a condition which increases the risk of cancer - liver cirrhosis, Barrett’s Oesophagus, Inflammatory Bowel Disease or polyps. We’d also welcome interest from people who are active members of community groups in north east London.

This is a great opportunity to co-design a person-centred approach to cancer diagnostic pathways at a dedicated centre. If you are interested, please read the Role Description, and then send a completed Expression of Interest form to , by the deadline of Monday 27 August 2018.

You can read more on our blog:

The Role Description and Expression of Interest form can be found on this webpage:

2.       Patient Experience & User Involvement Steering Group – co-chair (paid role)

Our Steering Group is made up of people affected by cancer who are passionate about engaging communities and making an impact on the future of cancer care. It ensures that the views of people affected by cancer are represented at the highest level. The Steering Group oversees all of the work we do to improve cancer care and work collaboratively with local communities.

We are looking for a person affected by cancer to be our new co-chair. The co-chair receives payments for involvement, in recognition of the contribution of the role.

This role would suit someone who enjoys thinking strategically, is committed to representing the diverse population we serve, and working collaboratively with patients, communities and healthcare professionals.

We want to ensure that membership of this group reflects the diversity of the communities we serve. Therefore, we’re particularly keen to hear from people from black and minority ethnic communities, people of working age, people who live in east London, and people who were treated at Barts Health, BHRUT (Barking Havering and Redbridge Hospitals) North Middlesex, Princess Alexandra or Homerton Hospitals.

The Role Description and Expression of Interest form can be found on this webpage:

 3.       Using routine health data to diagnose lung cancer earlier project – patient/carer reps

Outcomes for lung cancer in north east London are very poor, often because people are diagnosed at a late stage. We don’t fully understand the reasons why. UCLH Cancer Collaborative is embarking on this project with Cancer Research UK to look at data which is routinely collected by the NHS, and to see if it is possible to identify any trends which could help. The project will be looking for ‘actionable moments’ in the year before a person is diagnosed with lung cancer. We hope this will identify opportunities to diagnose and treat people earlier.

We are looking for two people to join the project group as patient/carer representatives. You don’t need to have experience of lung cancer specifically - we’d welcome people with experience of any kind of cancer for this project. What’s important is that you are interested in the potential of using data to improve health services, and are willing to learn.

If you are interested, please read the Role Description, and then send a completed Expression of Interest form to , by the deadline of Friday 17 August 2018.

The Role Description and Expression of Interest form can be found on this webpage:

 4.       Quality of Life Pilot Steering Group – patient/carer rep

We are piloting a ground-breaking new tool for measuring quality of life for people affected by cancer. Currently, there is no measure in place to assess how well patients are supported after their cancer treatment. This tool will establish people’s quality of life and their needs, such as help at home or financial advice. We are looking for people affected by any cancer who would like to join the Steering Group overseeing and shaping this project.

If you are interested, please read the Role Description, and then send a completed Expression of Interest form to , by the deadline of Friday 17 August 2018.

The Role Description and Expression of Interest form can be found on this webpage:

We are particularly keen to promote the new Patient Advisory Group for the Alliance Diagnostic Hub – a flyer for this is attached:




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Advocacy services in Hackney

Source By: NHS Community Voice,Healthwatch Hackney

Come and have your say

  • Have you used Advocacy services in Hackney?
  • Tell us what is good and what could be better
  • Find out where to get support if you need Advocacy


Advocacy is when you are supported to:

  • Know your rights and exercise them
  • Access information & services
  • Make choices about your health & care
  • Make a complaint

When:   Thursday 13 September 2018
Time:     2.30pm-4.30pm
Where:  Pembury Community Centre, 1 Atkins Square, Dalston Lane, E8, 1HL
You can Book HERE
For transport please call 020 7923 8358


Safeguarding awareness in Hackney

Safeguarding awareness in Hackney

  • Safeguarding Awareness for the workforce 23 August 2018
  • Safeguarding Champions Community offer for service users
  • Safeguarding Principles - Making Safeguarding Personnel and advocacy training
  • Safeguarding is Everybody's responsibility

At Hackney CVS we create and promote a range of opportunities that help the adult workforce to meet funders safeguarding compliance requirements and support adult service users to understand how to detect and protect each other from abuse and harm.

Offer 1 
The next Safeguarding Adult Safeguarding Awareness training -the essentials will take place on Thursday 23 August 2018

Offer 2 
Hackney has a team of trained safeguarding adult champions. Our champions deliver talks or training sessions for up to 2 hour to service users or residents in community settings. We are keen to hear from faith groups, Muslim communities, older people and African heritage communities. To find out more contact

Find out how we can support service users to protect each other from harm and abuse. For more information contact

Offer 3 
VCS Meet Making Safeguarding Personnel 
As part of the Care Act 2014 there is a need to ensure that all organisations adopt the principles outlined in MSP (making safeguarding personal).

VCS Adult safeguarding leads and advocates are invited to express an interest in the briefing session. 

Offer 4 
Safeguarding Adult Health check
Funded and unfounded VCS organisations are expected to meet the adult safeguarding requirements. 
VCS organisations are strongly encouraged to complete the Safeguarding toolkit and health check. 

Offer 5

Are you the named safeguarding lead?

Do you offer advocacy or support to adults with care and support needs in Hackney?

Do you work to create a fairer society for local people?

Hackney CVS plans to organise events to share the lessons from domestic violence and serious adult reviews. It is important that we comply with GDPR requirements. If you are interested in being in our safeguarding mailing list, do complete the safeguarding sign up form and we will keep you in touch with future adult safeguarding learning events.




Calling Hackney's Windrush generation

Source By: Connect Hackney

We are producing a commemorative book and audio podcasts of Hackney’s Windrush generation as part of our Connect Hackney work.


The booklet and podcasts will be launched at a special Windrush tea party at the Town Hall in October and will be archived in Hackney Museum so this is a great opportunity to celebrate the contribution of the local Windrush generation and to contribute to  the local archives.



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